In 2020 Tour du Rutor rhymes with solidarity. To celebrate the twentieth edition two charities will receive some donations: Sanonani House and Parent Project APS.
Helping people and the most needy children and foster the promotion of the scientific research represent two moral commitments nobody can escape from.
This year Tour du Rutor, which supports Sanonani Onlus Association since many years, decided to double and join the project of Parent Project APS in order to contribute and help the achievement of difficult but not impossible goals: important values shared with the “extreme” and agonistic spirit of this ski mountaineering race.The association Parent Project APS is present in Arvier municipality as a charitable and creative aggregation event supporting the research about Duchenne and Becker muscular distrophy.
Sanonani Onlus association has been founded in 2015 in order to help Nepalese children thanks to the will of the alpine guide Marco Camandona and his wife Barbara, together with the cooperation of their friends Paola, Lara, Fausta and Andrea and a group of alpinists and their wives. During the years the founders have been upheld by a great number of supporters and volunteers, friends and benefactors. The orphanage Sanonani (which means little child in Nepalese) is situated in the suburb of Kathmandu (where life conditions are much more difficult) and nowadays it accommodates 25 children (either orphans or needy children) who can attend the public school and live in their homeland keeping their customs. The most important aim consist in helping these people by respecting and preserving their culture, their language, their religion and their thought. It is a concrete way to express gratitude to Nepalese people for their behaviour towards the alpinists which respect nature and environment.
Parent Project APS is an association of patients and parents with children suffering from Duchenne and Becker muscular distrophy, a real serious rare and degenerative disease which affects one male newborn in 5000 without a specific treatment at the moment. Since 1996 it is focused on the improvement of therapies, life quality and long term perspectives for children and teenagers through research, education, training and awareness raising projects. The main goals which helped the growth of the association consist in assisting and supporting the families of children suffering from this disease thanks to a network of listening centres, fostering and funding scientific research and expanding a cooperative network able to share and spread key information.